June 3, 2008
We are visiting with our daughter in California, and Health is always on our mind wherever we are.
In this context Senator Edward F. Kennedy and his current health situation is forefront in our thoughts.
Senator Kennedy, under his leadership and through the liaison between JJAMD and his HELP Committee, and with the guidance and support of his Top Health Aide, David Bowen, Ph.D., have made significant contributions to the TMJ/TMJD Patient population by advancing the need for truth in science, and spotlighting the TMJ/TMJD Dilemma throughout the NIH, NIDCR, and other Governmental Agencies.
Together, we have helped bring awareness and prevention of this widespread health disorder/disease to the millions of Americans already afflicted with the Jaw Joints Disorder:TMJD--which is now acknowledged to be allied or overlapping with other disorders. The journey has been long, and progress will continue to be frustrating and unresolved until such time as the Jaw Joints and their allied TMJ Disorders are acknowledged as a Legitimate Medical Clinical Entity, a visible, energized national grassroots movement forms to push our cause into mainstream acceptance!
In the spirit of appreciation of Senator Kennedy's magnificent efforts to help all Americans, we ask that you please write a note of Good Health for his recovery and continued Leadership role as Chair of the Senate Committee on Health.
Please send your e-mail to JJAMD at: tmjoints@aol.com. We will then forward it directly to him.
Thanks so very much, Renée and Milton
April 24, 2008
HealthBookmark.com
, a leader in Health Directory is looking for quality websites to be added to our index. Our main purpose is to serve the best intersts of our visitors. We found your website (http://www.tmjoints.org/) through search via Google and Yahoo. After evaluation, we felt that your website has a great potential with it's quality of design and excellent quality of contents which will truly benefit our visitors. We are proud to inform you that your site has been added to our index as a regular listing under (http://www.healthbookmark.com/orthopedics/ associations.html). This will be beneficial for our visitors plus increase the site's prominence.
February 27, 2008
Donation Mixup and Fellowship News
In a recent conversation, a TMJ Patient brought to our attention that he had made a donation to JJAMD for the Milton and Renée Glass Family TMJD Fellowship at Forsyth. He wondered why JJAMD had not acknowledged his donation.
GOOD NEWS: In the very short time since the implementation of our independent Fellowship in 2005, it has created a lot of enthusiastic support,
The complete story can be seen by clicking on the above link.
January 5, 2008
Security’s inequity borne by elderly women
So many TMJD patients in their older years are faced with benefit cuts and difficulty in acsessing their rightful entitlements
The pundits in Washington are worried that the debate over cutting Social Security benefits has been postponed until after we elect a new president. As usual, they’re only half right. While the debate has been delayed, benefit cuts are happening every day, and the victims are almost exclusively elderly women.
The villains in this story are pernicious cuts known in bureaucratic jargon as GPO and WEP.
By Teresa Heinz Kerry and Jeffrey Lewis / As You Were Saying .
The complete story can be seen by clicking on the above link.
January 1, 2008
WE WISH EVERYONE A "HEALTHIER NEW YEAR 2008".
THANKS TO EVERYONE WHO HELPED ADVANCE THE TMJ/TMJD MISSION.
2007 was a very busy eventful time for the Foundation. We will be sending along a fuller report after The New Year.
Milton and Renée
May, 2004
Talk to the Temporomandibular Joint & Muscle Disorder Interagency Group [TMJDIWG] NIH Meeting on May 5, 2004
AWARENESS, PREVENTION & PATIENT RESEARCH DATA: THE ROLE OF A TMJ ADVOCACY ORGANIZATION
April 18, 2007
Program
Current Research Programs in Greater Boston Studying the Biology of Jaw Joints & Temporomandibular Joint Disorders
February 23, 2007
MAY 15, 2007 SCIENTIFIC TMJ WORKSHOP AT FORSYTH
FORSYTH ANNOUNCES MAY 15 FIRST EVER SCIENCE WORKSHOP COVERING RESEARCH ON THE TMJoints. THREE BOSTON BASED SCIENTISTS TO LECTURE. DRAFT AGENDA BELOW WITH MORE DETAILS TO FOLLOW. NO CHARGE, BUT TO RESERVE SPACE PLEASE CLICK ON THE BELOW LINK AND PROVIDE
- Mailing address
- Telephone number
- Email address
TMJWorkshop@Forsyth.org
February 11, 2007
Iraqi toddler in limbo as she awaits US visa for surgery
Army unit raised money for girl without jawbone
February 5, 2007
July, 2006 FNIDCR Online Newsletter
The Friends of the National Institute of Dental and Craniofacial Research (FNIDCR) online newsletter
Patient Advocacy Spotlight: Temporomandibular Joint and Muscle Diseases and Disorders
Forsyth to Take Leadership Role in TMJ/TMJD Research
January 16, 2007
Fellowship News
Here is a letter from Forsyth leadership regarding news of the Milton and Renée Glass Fellowship
January 3, 2007
Scientists Discover How Maternal Smoking Can Cause Cleft Lip and Palate
Here is an example of what we try to express as a link to growth and development from fetus on up.
THIS NIH/NIDCR supported research speaks to "craniofacial structure" and the impact a smoking mother has on her babies. (JJAMD has been speaking to this allied overlapping probability for years, including nutrition and alcoholic consumption.)
It begs the questions:
- "Could this very same study have ALSO shown evidence of the impact on the TemporoMandibular Joints?"
- "Do we have to re-invent the wheel to prove the correlation?
- Or can we tap into this significant finding as a continuum?
January 3, 2007
2006 has been a memorable year. Our new TMJD Fellowship has excited the research community, and a scientific seminar will be held soon, according to the Forsyth Institute Fellowship Committee.
Plans are in process of moving forward on a number of fronts which we will be reporting in the near future.
Please let us hear from you with your thoughts and experiences.
Milton & Renée Glass
Co-Founders & Co-Presidents
Jaw Joints & Allied Musculo-Skeletal Disorders Foundation [JJAMD]
The Forsyth Institute
140 Fenway Boston MA 02115
E-mail: TMJoints@aol.com
November 30, 2006
Alert-NIH Reauthorization. Message from Friends of NIDCR
Sample Letter to Send to Congress
This letter from Friends of NIDCR is an opportunity for advocates and patients to take action, which might be helpful to you in your search for wellness and entitlements. If you do write, JJAMD would appreciate being cc'd in your letter, or receiving a separate e-mail that you took action and got a response.
Thanks, and "Together We Can Make a Difference Sooner" in our struggle to bring appropriate awareness, education, research, wellness, insurance coverage and other entitlements, and Prevention of TMJ/TMJD and co-morbid disorders. We wish you Healthier Holidays.
Milton and Renée Glass
Co-Founders/Presidents
Jaw Joints & Allied Musculo-Skeletal Disorders Foundation, Inc.
June 25, 2006
TOOTH DAY AT FENWAY PARK
TOOTH DAY AT FENWAY PARK" is an exciting community public health outreach effort for good oral health. This program was initiated by The Forsyth Institute with the Boston Red Sox in Boston. It begins June 25 and runs until July 22, 2006.
June 6, 2006
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June, 2006
FOSAMAX® INJURY INFORMATION
These items were extracted from various insertions on the internet, often from legal firms offering to represent those unfortunate to have been victims of injury from Fosamax®.
March 8, 2006
Independent Panel to Evaluate Whether Genistein or Soy Formula is Hazardous to Human Development or Reproduction
This NIH News Advisory is interesting as it deals with the growing interest of NIH in human growth and development and reproduction.
March 8, 2006
February 14, 2006
Infection Worry Spurs Teether Recall
Important information on children's teethers and walkers, both of which can cause serious oral problems.
December 14, 2005
Seminar Launches Post Doctoral Fellowship to Study Temporomandibular Muscle and Joint Disorders
Boston - On December 6, the effort to combat Temporomandibular Muscle and Joint Disorders (TMJD) took a large step forward. A seminar launching the Milton & Renée Glass Family Fellowship to study TMJD was held at The Forsyth Institute: the world’s leading independent organization dedicated to research and education in oral and craniofacial biology and related sciences. The goal of the fellowship is to understand the disease, prevent it, and identify effective therapies for its treatment. It also provides a unique opportunity to promote awareness, prevention, and education related to TMJD in children.
November 10, 2005
Temporomandibular Joint Research: A Multidisciplinary Medical/Dental Challenge
The Forsyth Institute and The Jaw Joints and Allied Musculo-Skeletal Disorders Foundation cordially invite you to an important seminar on Tuesday, December 6th, 2005 at 1:00 p.m.
Seminar Brochure
October 6, 2005
Health Care for All of Massachusetts
This is an example of what is being done in Massachuseets and other States to encourage the movement for Health Care for All
September 14, 2005
Letter from the THE JJAMD FOUNDATION Co-Founders AND Co-Presidents
July 18, 2005
New Online Continuing Education Series on Complementary and Alternative Medicine
The National Center for Complementary and Alternative Medicine (NCCAM) at the National Institutes of Health (NIH) is offering a new online Continuing Education Series on complementary and alternative medicine
July 13, 2005
Studies often conflict, the latest one reports
Here's some medical news you can trust: A new study confirms that what doctors once said was good for you often turns out to be bad, or at least not as great as initially thought
June, 2005
Hospitals cut costs for uninsured
Two of the state's largest hospital networks, Partners HealthCare and UMass Memorial Health Care, will no longer routinely charge uninsured patients full "sticker price"
May, 2005
BREAKTHROUGH TMJD FELLOWSHIP HONORING AMERICA’S PIONEER PATIENT ADVOCATES INITIATED AT LEADING RESEARCH INSTITUTE
Milton and Renée are thrilled to share with you one of the most exciting developments in their quarter century as TMJ Patient Advocates
May 11, 2005
Senator Kennedy sent this extraordinary letter to NIH Director Elias Zerhouni, M.D.
This represents the third time Senator Kennedy has written to NIH on JJAMD's behalf to help the American public.
The prior two times--while it got good results--and which we became active participants as Patient Advocates in the NIHTMJD Interagency Working Group. Nevertheless, NIH sent it to NIDCR to continue as the "engineer". This time, we are hoping that NIH, itself, will step up to the plate to make the Medical-side more prominently effective. This will augment our philosophy that the Medical-side must work along with the Dental-side to enhance needed research to dignify the Jaw Joints as Joints, and the TMJD disorders to them as "Legitimate Medical-Dental Clinical Entities. .
It will also enhance the mission and goal of the Glass-Forsyth PostDoc Fellowship to help all Americans on all levels through useful helpful data towards excellent research. It should also help as we go forward for grants, fundraising, and the like.
May, 2005
2005 National Women's Health Week (May 8-14)
It is Important for TMJ patients and the public to see what the "National Women's Week" is emphasizing. Everyone should write an e-mail to http://www.4woman.gov/whw/ and demand that TMJ Awareness be part of this event each year. Ask your government in action to include you in this program...it is your right and your health.
May, 2005
USA Today Pain Series.
USA Today paper has a whole section on Pain which we know you will find interesting and applicable to our work. You can see it on the web under USATODAY.com
February, 2005
ProHealth Website.
TMJ patients may find "ProHealtlh.com" an interesting site for news about natural health products. You can subscribe to the bi-weekly news letter free of charge. The current issue has some valuable information about arthritis pain, for example.
January, 2005
Most in U.S. think clinical trials safe; public registry would boost trust, poll shows
Two-thirds of Americans queried in a December survey feel clinical trials and studies are safe for participants, the Center for Information and Study on Clinical Research Participation reports
January, 2005
Our 2004 comprehensive report on activities has been further delayed. As of today, we have been promised news from Senator Edward F. Kennedy pertaining to his latest letter to NIH regarding progress on TMJ/TMJD. We have been told that the many changes in Washington, and in particular Senate staff changes, have held up his response to JJAMD. The Senator's new staff members need to become more familiar with the TMJD situation so they can help the Senator to respond some time before this month-end.
In the meantime, we have been very busy on behalf of TMJD patients and the general public world-wide. One such promising project has been our plan to establish a "TMJD Research Fellowship" with a leading research organization. This bodes well for appropriate future scientific study directly applied to the TMJD problem by highly qualified bio-medical researchers, which, we are told, is a first in the USA. Our emphasis will be on Awareness and Prevention of TMJD in children and adults. This project was made possible by a generous donation of $75,000, with more promised, in the near future. Of course, this is the motivating force for this Fellowship. Of course, we have been told that significant more funding will be necessary in order to enhance this effort. We hope that the patients and the public will want to become active donors, and as soon as possible become active participants in the TMJD Natural History Patient Registry which we have worked for so many years. The Registry will allow all to give comprehensive medical/dental histories to help "Prove the TMJD Case."
We will give you a more detailed report as it develops. We will also send a prelimINary report ASAP about other matters. Finally, we will publish Senator Kennedys update when received.
Milton and Renée
November, 2004
In the meantime, we have been putting a great deal of information on the website under "government releases" and other sections....so please keep up to date by reviewing this material frequently. Some of this information is important to your health and others will keep you up to date on what is happening in the TMJ field and in the area of general health information.
We extend to all of you our hope for a healthier season's greeeting and a healthier..and therefore happier... new year. Milton and Renée
November, 2004
FDA Whistleblower Seeks Legal Help From Public-Interest Group
TMJ patients, and in particular those with jaw joints implants, rely on the FDA to approve the use of materials and devices that go into the body. Increasingly, there seems to be more discussion of FDA's failures. This is one example of how a "whistleblower" is being discredited for making public one of the most serious failures at this time -- that of allowing the distribution of Vioxx, which is a pain killing drug used by many TMJ patients, and now pulled off the market as being dangerous.
September, 2004
Good News From JJAMDF
JJAMD has received an unexpected donation of $75,000. The donor requestis that we continue our mission reflecting our own knowledge and independent research from the Patients' Perspective and to help bring appropriate awareness of healthy Jaw Joints and the prevention of the disorders to them ....TMJ Disorders [TMJD].
This comes at a particularlly propitious time, since our seven-year effort--in collaboration with distinguished institutions--to encourage NIH to establish a "Natural History TMJD Patient Registry" was "blown out of the water" by NIDCR last Thanksgiving, giving all of us little to be thankful for.
We hope that this might help to partially fund a demonstration Registry. To this end, we will be setting up a special "JJAMD TMJD Registry Fund" so that the TMJ population and the general public might cooperate to fill a void in the health care and insurance communities. We are also meeting with other resources and interested researchers to participate in independent data collecting for research.
We will be publishing a more in-depth "Current News" report ASAP. We have been withholding this news pending hearing from NIH/NIDCR and Senator Edward Kennedy's May 2004 meetings.
We wish you all better health. Sincerely, Milton and Renée
August, 2004
Newsletter of the TMJ Association
This newsletter of the TMJ Association contains information regarding Senator Kennedy's letter to Dr. Zerhouni, Director of the National Institutes of Health
August 2, 2004
CoMorbidity Press Release
Having attended a meeting at NIH covering co-morbidity among TMJD and other overlapping or related disorders, this NIH release is relevant. While not specific to TMJ disorders, it does discuss the relationship of a core medical problem with co-morbid conditions that result from such a problem. This, of course, is exactly the case with TMJ where such medical problems including Fibromyalgia, Chronic Fatigue Syndrome, and many other conditions, include or overlap with the basic TMJ medical condition. We hope that the conference in which we participated as Patient Advocates will lead to a massive study of co-morbid conditions which will help to establish TMJ as a "legitimate" medical condition which is the case with the co-morbid conditions which have the "respectability" of being considered medical conditions for health insurance and other entitlements.
May 27, 2004
Remarks from Milton and Renee Glass about Senator Kennedy's Letter
Letter from Senator Kennedy to NIH on behalf of TMJD Patients and the Public
May 10, 2004
Cover The Uninsured Week
STATEMENT BY TOMMY G. THOMPSON
Secretary of Health And Human Services
Regarding "Cover the Uninsured Week"
May, 2004
May, 2004
Talk to the Temporomandibular Joint & Muscle Disorder Interagency Group [TMJDIWG] NIH Meeting on May 5, 2004
AWARENESS, PREVENTION & PATIENT RESEARCH DATA: THE ROLE OF A TMJ ADVOCACY ORGANIZATION
May, 2004
Sponsored by the Temporomandibular Joint and Muscle Disease Interagency Working Group
Biological Mechanisms Linking Co-morbid Conditions Associated With Temporomandibular Joint and Muscle Disorders
February, 2004
JJAMD SUPPORTS FORSYTH RESEACHER STUDY INTO TMJ GENETICS
Statement from Patricia Purcell, Ph.D, The Forsyth Institute
Harvard School of Dental Medicine.
February, 2004
MILESTONES '03 REPORT WILL APPEAR IN SECTIONS
JJAMD continues to work on a Year-end 2003 report.
February, 2004
TMJ Patient Meeting
TMJ Patient Meeting
TMJ Interagency Working Group Meeting
The Third Scientific Meeting of The TMJ Association
May 5-7, Hyatt Regency Bethesda, Bethesda, MD
February, 2004
NIH abusing salary exceptions, lawmaker contends
Exception rule used to justify higher pay
By Rick Weiss, Washington Post, 2/18/2004
February, 2004
INSURERS INCREASINGLY OFFERING HOSPITAL COMPARISON SOFTWARE
TWO MASSACHUSETTS HEALTH INSURANCE COMPANIES PLAN TO PROVIDE AN ON-LINE TOOL LATER THIS YEAR FOR MEMBERS TO COMPARE HOSPITAL PERFORMANCE
February, 2004
JJAMD’S 2003 YEAR END REPORT
FROM MILTON & RENEE
TELLING-IT-LIKE-IT-IS - i.e. THE GOOD & THE BAD
January, 2004
John Rugh's Speech to Educators/Scientists
Ever wonder why it takes so long to transfer TMJ science to the clinician? Here
are some thoughts from Professor John Rugh..click onto the section "On-Line
Library"
December, 2003
Every Day Is a Life
JJAMD’s founders and website provided authors Zoe Moraga and Dyana Jones valuable resources in the publication of their new book "Every Day Is a Life" The cover page cites: "A True Story of Suspense and a Testimony. Delivering a message of regeneration of spontaneous and natural inner peace, of joy and love - by the Jaw Joints."
The Xlibris Press Release reports "Every Day Is a Life is an extraordinary story of human strength, determination, and forgiveness that includes an experience with groundbreaking orthopedic innovations - achievements that attributed to Moraga’s recovery from her cranial trauma, posttraumatic partial amnesia and rediscovery of her strength and equilibrium in the spine, arms, pelvis and legs,"
If you wish to read the entire press release and order the book, click the rose.
October, 2003
Announcement that appears on The TMJ Association [TMJA] website
JJAMD and The TMJ Association Participated in NIH TMJDIWG Meeting at NIH Headquarters on 10/17/03
October, 2003
YOU CAN HELP MAKE "JAW JOINTS-TMJ AWARENESS MONTH®" A SUCCESS
JJAMD encourages everyone, both patients and professionals, who has an interest in TMJ and overlapping pain and dysfunction or other related disorders, to participate in "JAW JOINTS - TMJ AWARENESS MONTH®."
February, 2003
Our long awaited effort for a "TMJ Natural History Registry" is becoming a reality, with the issuance of an announcement by the National Institute of Dental and Craniofacial Research [NIDCR] NIDCR-BAA-DR-04-08. JJAMD is an integral part of this TMJ Registry as Patient Advocates.
The intent of this Registry is expressed in this quote from the National Institute of Health [NIH]:
"...advancing the state of the art or increasing knowledge or understanding....." Another quote from NIDCR concerning the intent of this Registry: "...promote the development of novel preventative and therapeutic strategies for patients suffering from these disorders." This gives you an example of the tone and the seriousness of purpose of all. Please note that this Registry is separate and distinct from the other TMJ Registry already dedicated to the failed TMJ implant patients.
We have always represented the TMJ Patients' Perspective, have conducted and published some independent research studies with the cooperation of many caring TMJ Patients, which have impacted NIH, NIDCR, and other Agencies, and the broader community.
This Registry will require the recruitment of both TMJ Patients and those at risk of becoming TMJ Patients. This is your opportunity to be seen and heard. Please let us know if you are interested in participating, by sending us an e-mail at: TMJoints@aol.com. Please provide us with the following preliminary information:
NAME:
ADDRESS:
e-mail address:
phone:
AGE:
SEX:
HAVE YOU ALREADY BEEN DIAGNOSED WITH TMJ; _______ [or]
DO YOU SUSPECT THAT YOU MIGHT HAVE SIGNS AND SYMPTOMS OF TMJ _______
YEARS IN TREATMENT_________
July 24, 2003
Anesthetic and Life Support Drugs Advisory Committee
Updated Open Public Hearing Session Times
June 25, 2003
News from the NIDCR
The NIDCR E-Newsletter provides information about NIH and NIDCR grant,
contract and training program policies; new NIDCR funding opportunities; new
grant and contract awards; NIDCR programmatic news; and meetings and events of
interest to the research community.
May, 2003
** Taking a New Look at Pain **
Why do we hurt? Scientists are gaining bold new insights into the nature
and dynamics of pain--and theyre racing to develop stronger, safer treatments.
Heres what the future may hold
May, 2003
Adult and Pediatric Cranio-Sacral Therapy & Neuro-rehabilitation courses
May, 2003
NATIONAL STRATEGY SEEKS TO IMPROVE AMERICA'S ORAL HEALTH
This is a major step Forward for Oral Health and craniofacial pain
April, 2003
March, 2003
Dow-Corning TMJ Jaw Joints Implant Patients
TMJ-ListServ asked JJAMD to put information on our website to help TMJ
Patients apply for any entitlement.
www.dcsettlement.com
January, 2003
JJAMD’S RETROSPECTIVE ON THE “TMJ YEAR” OF 2002
December, 2002
HHS reports on activity in 2002, or How Your Money is Spent
December, 2002
Radical change in doctor training needed
November, 2002
A roundup of current activities
October, 2002
NIH ANNOUNCES INSTITUTE OF MEDICINE STUDY OF COMPLEMENTARY AND ALTERNATIVE MEDICINE
September, 2002
Trademark Announcement
Milton and Renée Glass, Co-Founders & Presidents of the Jaw Joints & Allied Musculo-Skeletal Disorders Foundation, Inc. [JJAMD], proudly report that their trademark application for JAW JOINTS - TMJ AWARENESS MONTH ® has been approved by the U.S. Patent and Trademark Office and registered under the trademark section.
June, 2002
Feedback Expected Soon from Washington Regarding Meetings in Which JJAMD Participated
June, 2002
Men’s Health Issues Publicized
June, 2002
June, 2002
June, 2002
Alternative Medicine Office has a New Website
The National Center for Complementary and Alternative Medicine (NCCAM) is dedicated to exploring complementary and alternative medical (CAM) practices in the context of rigorous science, training CAM researchers and disseminating authoritative information. For additional information, including fact sheets, press releases, and other information about NCCAM, please visit our website at http://nccam.nih.gov
May, 2002
January 29, 2002
November 13, 2001
NIAMS, NINDS FUND MULTIPLE RESEARCH GRANTS IN FACIOSCAPULOHUMERAL DYSTROPHY
October 27, 2001
FOREIGN CLINICAL TRIALS ARE BECOMING A GROWING CHALLENGE FOR THE FDA TO MONITOR
June, 2000
"Analysis of Survey & Checklist" Published
April, 2000
Senator Kennedy Writes Two Letters on TMJ
April, 2000
NIDCR Director Praises JJAMD’s Work